DeCode ME

MAJOR NEW DNA STUDY LAUNCHED

DecodeME

Funding has been secured for the largest ever ME/CFS study to see whether the disease is partly genetic and, if so, help pinpoint what causes it.

The study should help the understanding of the disease and ultimately find treatments
Tens of thousands of people are needed to take the questionnaire and provide a saliva sample so the DNA can be studied. Both can be done from home.

25,000 DNA samples are needed and even more people to take the questionnaire.

The study has been expanded to include up to 5,000 DNA samples from people who developed ME/CFS after a Covid-19 infection.

Take part from home
You can take part if you meet all the following:
You have a diagnosis of ME/CFS from a healthcare professional
You are aged 16 or over
You live in the UK
TAKE PART IN THE STUDY
DR CHARLES SHEPHERD COMMENTS
This type of ‘genetic fingerprint’ study is already providing important information about the cause of some types of eye disease, Parkinson’s disease and prostate cancer.

Finding the genetic fingerprints for ME/CFS could therefore provide us with vital clues to help with diagnosis, treatment and even the prevention of ME/CFS.

Active patient involvement is right at the centre of the Decode ME study.

So we hope that people will now sign up and register their willingness to take part in this exciting new biomedical research project.”

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